Over the years I have been very open about the medical
issues that have impacted my life. I
have always advocated taking care of yourself, as well. For the past year my father has fighting the
uphill fight with cancer. Due to many
factors treatment options have been limited and we are now at the end of the
road. I am not sure how much longer we
have with him, and frankly I don’t want to know. Over the past month or so we, my family, have
made sure to make every minute count. We
have taken extended out of town weekends, we celebrated his birthday in style…
Unfortunately he past two weeks have been extremely
difficult on the cancer front. My mom
and I provided round the clock care for him (give me a second and I will address
hospice) which can be exhausting.
Hospice has been brought up multiple times, it is an option to ensure
the end of one’s life is as comfortable as possible. From my understanding, the issue with hospice
is once it starts most other medical care stops. While it is in the home it is still not
around the clock care, nurses and CNAs (among other individuals) come in on a
regular basis every week to help care for the patient. This is something we have discussed but there
are still medical treatments that are being utilized for my dad (not directly
related to cancer, but definitely an indirect correlation). So, we do have in home care involved, just
not to the hospice level.
Now, what does all of this have to do with being
selfish? A lot! I take great pride knowing I am helping my
parents through a very difficult time but I also know I need to take care of
myself otherwise my lupus with stop me dead in my tracks and I will be of no
use to anyone and I will need someone to care for me. I have sat down with my mom and broken the
day up into sections. I take this time
off and she takes that time off. I could
care less if she sets up a lawn chair in the front yard and takes a nap or goes
and gets her hair done. My time can be
used for beating the snot out of a heavy bag or going through the drive thru at
Dutch Bros getting my fill on their amazing coffee! As a caregiver it might seem selfish to take
time for yourself but nothing could be further from the truth. If you do not take care of yourself then you
are of no use. So caregivers… be a
little selfish!!!!
Put your heart, mind, and soul into even your smallest acts. This is the secret of success.
–Swami Sivananda
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